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Recaudación de fondos de octubre de 2020

Recaudación de fondos de PASOS 2022

GUARDE LA FECHA (Tentativa): del 8 al 15 de octubre de 2022 

TRES MILLONES DE PASOS MÁS CERCA DE #CURESDS (5K y desafío de pasos de caminata)

El registro y otra información se publicarán aquí, tan pronto como esté disponible.

A continuación puede ver la INFORMACIÓN DE LOS ÚLTIMOS AÑOS como referencia. 

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 ¡REGÍSTRESE ANTES DEL 27 DE AGOSTO PARA RECIBIR UNA CAMISETA GRATUITA DEL EVENTO! 

Bienvenido a la página de recaudación de fondos DOS MILLONES DE PASOS MÁS CERCA DE #CURESDS. Puede encontrar todos los detalles aquí.​

  • ¿Cuándo? 20 al 26 de septiembre de 2021

  • ¿Dónde? ¡Virtual! ¡Corre/camina/rueda donde quieras!

  • ¿Qué? ¡¡¡Divertida!!! ¡Recaude fondos y corra, camine o ruede en su comunidad!

  • ¿Por qué? ¡Para construir una comunidad y recaudar fondos para la investigación de SDS!

  • ¿Cómo? ¡ Regístrese aquí !
     

Con esta campaña de recaudación de fondos, estamos recaudando fondos para acelerar la terapia y el desarrollo de curas para el síndrome de Shwachman-Diamond, un raro trastorno genético de predisposición al cáncer que afecta a miles de niños y adultos en todo el mundo.

La misión de Shwachman-Diamond Syndrome Alliance es acelerar el desarrollo de terapias y una cura para SDS, en particular para eliminar el riesgo de leucemia mortal en SDS, en un período de tiempo que es importante para nuestros niños y miles de pacientes con SDS en todo el mundo. Nuestro enfoque es la investigación y el desarrollo: recaudamos fondos para la investigación más avanzada, construimos colaboraciones a nivel mundial e invertimos en herramientas de investigación críticas (como el proyecto del ratón) e infraestructura, ahora.

 

Sin duda, dos millones de pasos son demasiados para una sola persona. Pero juntos, los pasos se suman. ¡Podemos llegar allí!

 

¡Regístrese arriba y recibirá los detalles sobre cómo unirse al desafío y seguir/registrar sus pasos!

And just like that, the steps challenge is upon us! 

See the leaderboard in the count.it app or right here on this page.

Instructions on how to join the steps challenge can be found below.

Have fun and see you there!

How to Join the Steps Challenge

[A printable version of these instructions is available here]

Thank you for joining the Three Million Steps Closer to #CureSDS fundraiser by starting a fundraiser or making a gift. Now it’s time to get moving! In the time period between October 9th-14th, count your steps with your favorite device/app. You don’t have to buy a device if you don’t already have one! Most smartphones have built-in or free pedometers/step counting/fitness apps available, and using the leaderboard tool (Count.it) is free, too!

 

How to Register to Participate in the Challenge

 

The registration consists of either starting a fundraiser on our donation platform (here) or making a donation on the same page. Please don't skip this step, as this is a fundraiser to support SDS research.

Note: These instructions are automatically emailed to all registered participants. Please don't distribute these instructions to non-registered participants. 

How to join the Steps Challenge via Count.it

 

We partnered with Count.it to power the challenge. The Count.it platform works with most popular fitness tracking apps, including Apple Health, Fitbit, Google Fit, Garmin, Strava, and RunKeeper. PRO TIP: iPhone users have Apple Health built-in. Most Android phones have Google Fit, or it can be downloaded here free of charge.

 
How to join our #CureSDS Group on Count.it

 

You can join our group (called #CureSDS) via the Count.it app or on the web. You can think of “group” sort of like an event. If you don't already use a fitness tracking app, it's great to get that set up first.

  • Option A) Join via the count.it App!

Download the count.it iOS app or Android app, click "Sign Up," and follow the prompts.

When asked, click the "Join a Group" option. You will be prompted to enter our group invitation code. Group Invite Code: [f60c2a55]. Or, you can go back and click on your Group Invitation Link https://www.countit.com/invite?group=f60c2a55 again, and the count.it app should be able to add you to the correct group. 

  • Option B) Join on the Web!

Simply click the invitation link https://www.countit.com/invite?group=f60c2a55 and follow the prompts to login or create an account if you are new to Count.it. If the link doesn't work, paste this URL into your web browser.

 

Alternatively to the invitation code, you may be able to search or enter our group name. The group name is #CureSDS.

 
How to join your favorite Team within the #CureSDS Group

 

NOTE: Teams will only be available during the challenge period starting on October 9th!!!

  • During onboarding, you will be prompted to join your team. Simply click the Join button to do so. 

  • If you don't see your team (which may happen at the beginning of the challenge period), don’t worry, you can join later. Your steps and other challenge contributions will add up to your team as soon as you join.

  • To see all the Teams in your group, and join one, just go to your Settings >Teams page. All available Teams within our #CureSDS group are listed here, and you can join or leave simply by clicking the button to the right of the team name.

Note for team captains: Our group allows "user generated"

teams. You can create a new team by clicking the "

+ Add Team" link at the top right of the teams list. 

How to join the challenges

 

NOTE: Challenges will only be available during the challenge period starting on October 9th!!!

 

Once the challenges are active, your step counts will automatically be added up to the challenge and your team if you join one.  

 

You're done! Have fun!

 

Since the event is virtual, there are plenty of safe options for observing any recommended COVID-19 precautions. You can even do the challenge at home.

 

Questions / Comments? Contact us at the SDS Alliance: connect@sdsalliance.org or +1-617-329-1838.

For technical questions, please first check out the Getting Started for Users and Count.it's General FAQ.

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