Fundraiser October 2020

STEPS Fundraiser 2021

Graphics Fun Run Steps 2021.png


Welcome to the TWO MILLION STEPS CLOSER TO #CURESDS fundraiser page. You can find all the details, here.​

  • When? September 20st-26th, 2021

  • Where? Virtual! Run/Walk/Roll wherever you like!

  • What? Fun!!! Fundraise and Run/Walk/Roll in your community!

  • Why? To build community and raise funds for SDS research!

  • How? Register here!

With this fundraising campaign, we are raising funds to accelerate therapy and cure development for Shwachman-Diamond Syndrome, a rare genetic cancer predisposition disorder that affects thousands of children and adults worldwide.

Shwachman-Diamond Syndrome Alliance's mission is to accelerate therapy development and a cure for SDS - in particular to eliminate the deadly leukemia risk in SDS - in a time frame that matters to our children and thousands of SDS patients worldwide. Our focus is research and development: we raise funds for the most cutting-edge research, build collaborations globally, and invest in critical research tools (such as the mouse project) and infrastructure, now.


Two million steps are certainly too much for any single person. But together, the steps add up. We can get there!


Register above, and you will receive the details on how to join the challenge and track/log your steps!