This page is dedicated to beloved community members we lost to SDS and its complications. While we always try to celebrate any victories in our quest for therapies and cures, the reality of today is still that SDS is life threatening and is claiming the lives of too many. Every single person lost is one too many, and we won't stop until a bright future is available to all people affected by SDS. Here, you can read the stories of patients lost and witness the love of their loved-ones left behind. This is a place to keep their memory alive.